Wednesday, August 31, 2016

Thyroidectomy Day22 - All the pills

I am taking a massive number of pills throughout the day. To be more accurate, they are mostly vitamins.

If you follow my vlog you know that I use a six position pill cup. The cup has dividers for six different sets of pills.

Thanks to Eatela Ramirez's suggestion in one of the forums, I downloaded an app called Mango Health. Mango Heath tells you when to take a medication, keeps track of what you have taken, and will report any drug interactions.

The most important thing Mango Health told me? Calcium has to be taken at least four hours after taking Thyroid medicine.

Failure to do this can reduce the Thyroid medicine's effectiveness. I had been only waiting 30 minutes and didn't know I was causing problems!

Here is my Feast of Pills for the day

I start the day, 6:30-7:00, with my Thyroid Hormone replacement pill. 

At 9:00 am, I take a bunch of vitamins: c, d, biotine, and a Claritin.

At 11:00 am I take 3.5 calcium pillls, a Calcitriol and Centrum multi vitamin.

Mid afternoon, around 4pm, I take 3.5 more calcium pills.

In the evening, around 9pm,  I take 3.5 more calcium pills with Calcitriol.

I would rather eat this many M&M's instead of vitamins, but, this is life post-Thyroideectomy.







Tuesday, August 30, 2016

Post Op 3 Weeks Update

I am three weeks post-op. Life has returned completly to normal except for the following:

1. I am massaging my scar. It is supposed to be 3-4 times per day but usually I am too busy. I do sunscreen it when going outside.

2. I have read that RAI can mess up your teeth. I read recommendations to be in the best oral health possible, so, I am brushing them everytime I think of it - 3 times per day.

3. I am taking a boatload of pills five times per day

4. As part of eating to heal, one meal per day is a salad

5. I get blood drawn twice per week to check calcium levels. This week is an additional draw for the upcoming Endocrine appointment

6. When I leave the house I wear a shirt with a button up collar because the scar is still very red. 

7. I avoid shirts, like t-shirts, that ride close to the neck because they provide irritation after a few hours

I think that is everything I do that is different. Life is normal and the same except for those items. My energy levels are high, I am not tired, my mood is good, and (except for one Friday) I am highly engaged at work. Life is good!

Monday, August 29, 2016

Thyroidectomy Scar Massage

There are as many ways to massage a scar as there are doctors. But I couldn't find any videos demonstrating any methods. Watch my video to learn the method I use.










Why should you massage a scar? Massage will help break down the collagen that forms in the scar so the scar has the best chance of turning into something hardly noticeable. 

When massaging, provide whatever pressure you feel comfortable with. If you aren't using lotion, the scar can become red and sore from friction if you are pushing too hard.

Also, as part of scar care, keep sun tan lotion on the scar, especially if you know you are going outside. Reapply the suntan lotion throughout the day. You'll need to do this for about a year to avoid the scar from picking up a dark pigmentation. 

I hope this helps!

First Day Back To The Gym

I often see the question "when can I return to the gym", or, "when can I work out". I will share my story in the hope it will help you out.

Four hours after surgery, I was active. I walked the hospital wing with the aid of a nurse or my wife. Initially the walking was useful to get the anathesia out of my system. But when I ended up staying in the hospital for four days while my calcium levels straightened out, walking became a way to break up the boredom.

In my continuing (and lately failing) attempts at weight control I am a frequent gym attendee: five to seven days per week for an hour. Before I put on 55 pounds (something that I probably incorrectly blame my thyroid for) I would often work out for several hours per day, and just two years ago I was running five miles every day.

So, excercising is not a challenge for me.

That is why I continued to walk when I left the hospital and went home. I used the treadmill for light and slow walks, building myself up, being careful to be sure I was ready and wasn't over doing it. I started at 1.5mph for 15 minutes at a time, and that was fine.

On Post-Op day 10, my surgeon cleared my for physical activity. Even so, I knew I wasn't ready for the gym. I just continued to walk on the treadmill.

By Day 15 I was feeling pretty good. I was walking 3.5mph for 30 minutes, twice per day. Yet I still didn't feel like I was ready to return to the gym.

Day 20 hit and I was ready to return. I am starting a 10 week cardo program that involves 15-30 minutes on a stationary bike, 30-60 minutes on elipticals, time split evenly between two of three completely different styles of elliptical.

I don't feel ready for weight/resistance training. In fact, I am very careful (and a little timid) about lifting anything too heavy around the house. I am confident I will overcome that... I have ten weeks before I need to switch up my workout by adding weights.

My advice (for what little it is worth)?Listen to your body. It will tell you when it is ready to increase activity. Don't push yourself while still healing. A little bit is OK - if you can do 1.5 mph for 15 minutes? Great! Finally, remain flexible to your body's needs. If you physically need a shorter workout or to take a day off? Do it. 


Thyroidectomy: What to have ready when returning home

Most people will spend the first night in the hospital after a total thyroidectomy. The purpose of the stay is, primarily, to make sure calcium levels are OK. Whether it takes one day or several days for Calcium to become acceptable, you will eventually be sent home. Under the best of conditions you will be up and about, able to care for yourself. However, you might not be so lucky. Therefore, there are some things you can do in advance to prepare for your arrival home.

The following is a list of items to have at the house:
Ice pack
heating pad
soup
soft foods
ice cream/Popsicle
books/magazines
Neck pillow
Ibruprofen and Tylenol
thermometer
Throat lozenges/hard candy
Chapstick
Straws
Hand sanitizer
portable fan
Tums/Rolaids

You may not be up for grocery shopping for several weeks. Therefore, stock up to get you by.

You can only lie in bed for so long. Preparing a comfortable chair with a blanket, pillow, and a small table would be beneficial. Easy access to a television, electronics, and cell/telephone will help the time pass.

Preparing these items in advance will help with an easy transition from hospital to home.


Saturday, August 27, 2016

Exhaustion or Hypothyroidism?

Hypothyroidism can include being tired and depressed. I have read that some people will experience a hormone crash 2-4 weeks after a Thyroidectomy. Therefore I have been watching my mood, energy, and level of tiredness. Every day I score those three elements on a scale of 1-10. I have been fortunate to be able to score a 9 or 10 on everyday... Except for today.

Today is Day 19 of Post-Op and we need to do back-to-school clothes shopping for the boys. They are old enough to stay home alone, they hate clothes shopping, it is easier to just do it without them, so we leave them home. I hate clothes shopping worse than the boys - it is pure torture. If I had to choose between a poke in the eye versus clothes shopping? I would take a poke in the eye every time.

Luckily my wife loves to clothes shop or else we might never have new clothes in our house. She doesn't like shopping by herself so it is up to me to accompany her. 

We drove an hour to the other side of the city. 150 minutes at the mall were unproductive so we headed to Kohls. After four hours at Kohls, we left with several large bags of back to school clothes and clothes for my wife.

At somewhere around hour 3 at Kohls, something just stopped working correctly. I was drained of all energy, very tired, and had feelings of depression. I wanted to go home and go to bed.

Admittedly, four hours is a long time to do something that is close to torture. Maybe it was just natural exhaustion. Or maybe this was the result of a thyroid  hormone deficiency. 

Day 19 will get a bad score. Hopefully tomorrow will get a better score

Thursday, August 25, 2016

Post-Op Weight Loss

Not everyone experiences Weight Loss immediately after surgery, but enough people do experience it that it is something to expect. I weighed myself on the morning of the surgery. By day 8, I had lost 12 pounds! I was very happy!

There is more to the story about post-op weight loss. Most people who experience weight loss immediately after surgery report that they gain it all back fairly quickly.

I have been determined to do whatever I reasonably can do to keep those 12 pounds off. To that end, with the assistance of My Fitness Pal, I have been averaging 1800 calories for my 6'4" sedentary frame. I have removed refined sugars, white flower, soda, and anything deep fried. I am eating a lot of salad and taking whole foods whenever possible.

 I have been taking it very easy with exercise - just walking an average 20 minutes per day. I look forward to returning to the gym in four days (just holding off until I feel I am ready).

The results? I am now on Day 17 and since Day 8 I have gained back 1.5 pounds of the 12 I had lost. I am not too disappointed because I know that weight loss with Thyroidectomy often doesn't make any sense, my exercise efforts are still limited, and many other's experience is to regain the weight. But I will keep trying!


Thyroidectomy post-op Week Two

It is very difficult to find something to write about for a two week report because life has completly returned to normal. Normal, except for the 7am Thyroid pill and all the Calcium and vitamins I am taking. Normal except for blood work 2x/week to check my calcium levels. Normal except keeping my neck covered when we go out because the scar is still very noticeable. Except for that? Normal!

At 14 days, the scar looks pretty good and every day I can see it change and improve. My wife says I need to "own my scar", which means looking at it and touching it. I don't look at it much, and rarely examine it. And for whatever reason I haven't touched it, expect a couple of times briefly. I know I need to start massaging it, so, she is right - I still need to "own it".

I am trying to be active on some Thyroidectomy social groups, but I really don't know that much to be very helpful.

Besides that? Life is good and back to normal.



Monday, August 22, 2016

Post Thyroidectomy Day 12

I had a great weekend and accomplished much. Unfortunately, weekends are never long enough!

This was the first weekend of "going out".  I helped my wife pick out a new cell phone and then we took the kids to  a demolition derby. 
I didn't want to draw attention to the scar so I just buttoned up a polo shirt.

I was concerned about keeping the scar clean during the derby. Sometimes the air can fill with dirt and fumes. For that, I added protection by tapping a soft medical gauze over the scar.
The gauze wouldn't stay in place due to the heat and humidity, but I did my best to make sure the scar stayed covered.

Really good weekend as everything is returning to normal

Saturday, August 20, 2016

Self Concious About The Scar

It is Saturday morning and my wife and I are eating breakfast. She tells me about the weekend schedule: "You and I are going shopping because afterwards I need you to stop at Vetizon and help me pick out my new cell phone. Then on Sunday after church, the church gang is all going out to lunch..."

I stopped her and said "wait a minute...  Eleven days ago I was lying on an operating table with my neck split open." My scar looks better but it is still red and swollen and I still have a 2x2 yellow puffy area under the incision. I said "I am not going anywhere with anyone - especially with people I know."


She answered "Are you going to just hide in the house for the next six month?"

"No," I told her. "I just want to wait until the scar looks better. I don't want to gross anyone out, especially while they are trying to eat!"

It was then I realized I had crossed over a bridge I previously hadn't thought I cared for. I am a guy. Scars are cool. I don't care if I have a scar!  

But apparently I do care if I have a scar.

I feel great - better than before the surgery. I can go anywhere and do anything I want. I have so much energy now!  I suppose it is easy for everyone to forget that I am still healing. And an unexpected part of that healing is coming to terms with a red puffy 11 day old scar

I agreed to the weekend activities that didn't involve people I knew. And my wife agreed that I am not yet confortable with this scar. I know she will help me through this and push me to be better. She keeps telling me "it looks OK, if anything, it looks like you are wearing a necklace".

Maybe in another week or two I won't be so self conscious.

Thyroid Cancer: Thyroidectomy Post-Op Day 11

Click to see video


Thursday, August 18, 2016

Surgeon Follow-up Questions

My follow up appointment with the surgeon is on Friday, ten days after the surgery. My greatest fear is that he will stick that camera down my nose and look at my vocal cords. That was very painful last time and I really don't want to experience that again!
My incision looks all crummy due to the glue coming off. They told me not to pick off the glue, so, I haven't touched it. But it looks nasty due to the glue. I hope he will be able to clean it up, or, give me some direction for doing so.

I have assembled the following list of questions that I will be taking with me:


INCISION
- Care for incision? 
- reduce the scar? Massage it? What to keep on it?

RADIATION
- needed?
- who, when, where?

CANCER
Stage? TNM Stage?
Full body scan in the future? When?
Other scans or tests needed? When?
When will I be "cured"?

LYMP NODE BIOPSY
- results? Cancer?
- if cancer, then what?
- spread? To Where? How to find out?

CALCIUM
Is my calcium level ok? Who is watching it?
If I miss a calcium dose, what is the best way to catch up?

OTHER
OK to Drive?
OK to Lift?
Should I get a Medical alert bracelet?
Check IV location - painful
Sore throat - how much longer?
Puffy area under incision OK?
Who will be reading my pathology report?
Who is the best to explain tsh, t4, free t4, etc?
What if a catastrophe happens and I couldn't take thyroid pills. How long before it would be a problem?


I will provide an update tomorrow with many of the answers to these questions.



Thyroidectomy: Pill caught in throat

I have always had difficulty swallowing large pills - I can do it, it just isn't comfortable. Today, I took a large number of pills and found the last one, a fairly small vitamin D, felt like it was caught in my throat. It was located between my incision and adam's apple. So, I decided to do some research about this problem and how it is related to thyroidectomy.

According to NCBI, a complication of Thyroidectomy is laryngeal nerve damage effecting vocal cords. Food and pills can get stuck in the throat if the vocal cords were damaged during surgery. If the cords (or part of the cords) are paralyzed, food can get trapped and then inhaled into the lungs which could lead to pneumonia (the body attacking the aspirated food in the lungs). Even if not paralyzed, the vocal cords may be injured and healing, so, the time after a thyroidectomy is a time to watch for pills and good getting stuck.

Verywell.com points out that Individuals with a thyroidectomy need to also be aware that there could be a phantom feeling of having something stuck in your throat. It might feet like something is there when there really isn't. It might just be irritation in the windpipe. But when in question? Play it safe.

According to Healthline.com:
Pills shouldn’t be left in the throat to dissolve. A pill can burn the lining of the throat, causing esophagitis, a condition where the esophagus becomes inflamed. Esophagitis can also be caused by other conditions, such as gastroesphageal reflux disease (GERD), infections, or injury. This can make swallowing difficult and painful.

Try these steps:
1. Put water in your mouth
2. Lie down flat on your back
3. swallow

If that doesn't work, try a small piece of soft food. That might be able to kick the stuck pill loose.Just be careful that the additional food doesn't get stuck too leading to a choking hazard.

If this becomes a regular problem? Healthline recommends taking your pill with applesauce, jello, or yogurt.Also, discuss the problem with your doctor to learn about options.

Wednesday, August 17, 2016

Thyroidectromy post-op 8 days: A Healing Diet

My nutrition goal is to maximize my healing.

My first four days after surgery were spent at the hospital eating hospital food. The hospital food was excellent, healthy, correctly portioned, and I very enjoyable. Staying at the hospital so long had a tendency to be boring, so, I would walk laps around the hospital wing in order to stay active.

I have brought those habits home from the hospital with me.

Before surgery, I usually exercised 30-60 minutes per day on a stationary bike, elliptical, or walking. I am now strictly walking and taking it easy. Instead of 4mph on the treadmill or even jogging, I am walking 2.5 mph - just enough to break a light sweat.

The biggest take home was with the diet. I researched what I wanted to eat after surgery to promote healing. After surgery, I have been using My Fitness Pal app (something I regularly used before) to keep track of calories, but even more important - I am now using it to keep track of nutrition. The app will tell me if I am over on sodium or low on potassium, for example. I try to design meals around meeting my nutrition needs because I want to heal up quick and right.

I am also sticking to whole foods as much as possible. A whole food is an unprocessed item in its natural existence. For example, a potato can be baked and eaten with very little seasoning or additional flavoring added. An apple is a whole food. I am eating a lot of natural apple sauce where the only ingredient is apples. For protein, I am sticking to lean alternatives such as chicken, turkey, and eggs (although I have a roast in the crockpot (slow cooker) for tonight). I get meats from the meat department, avoid oily marinades, and just bake, cook, or grill it.

Next, I have removed refined sugars, white flower, diet soda, and anything deep fried. Again, I might not (or maybe I will) have this be a life style change. My goal is promote healing and these items do not help! Instead of soda, I am drinking tons of water. If I have bread, it is whole grain. If I have cereal, it is All Bran. My daughter brought home an incredible crumb apple pie that I decided not to eat because I would rather heal. My only "sin" in this area - I do use a flavored creamer for my coffee.

I have a short list of super healing foods that I use to snack on. For example, I might grab a couple of raw shelled almonds, tangerines, yogurt, or some All Bran cereal.

It has only been eight days and I am pleased with the results. I plan to continue this effort and will provide further updates as time goes on.

Monday, August 15, 2016

Thyroidectomy post-op 138 hours

Click here to see video


Patient care

Any exposure to the medical system will reveal its inefficiencies. Although things have gotten better, there remains room for improvement.

When the Endocrine Doctor did a consult while I was in the hospital, she said she wanted my calcium levels checked twice per week and she wanted me to message her through the hospital's online patient system if there were any calcium problems. 

When I was released from the hospital the 2x/week bloodwork was not part of the orders.

No problem... The hospital network has a nifty online tool for communicating to doctors. So, I tried and my endo Doctor isn't listed as an available contact. Odd. How will I notify her about calcium results?

I sent a note to my surgeon, waited the required 48 hours, and did not get an answer.

Next I called the Endo doctor office and explained the situation. I was told my primary Doctor has to submit those orders. Primary? What does he have to do with this? OK!

I called my Prinary and they didn't have a clue what I was talking about but would be happy to submit the order. Unfortunatly my primary Doctor is in a different hospital organization and needed a fax number for the other hospital system so they can submit the order.

Two phone calls later, I get the fax number and report it back to my primary. What a hassle! For something the Endo Doctor should have done from the start! 

Next problem: I need to get the Endo Doctor added to my hospital app so I can provide the calcium updates. A message and two phone calls later, I learned that a doctor can not be added as a contact simply based on a consult. 

Either I'm crazy or that Endo Doctor is. All this could have been easily fixed if she had went into the system, indicated that we had met, and put in the orders. Instead I spent hours making many calls trying to get things straightened out!

This had better not be a sign of things to come!

Saturday, August 13, 2016

Thyroidectomy Post-op Day 5

Today was my first full day at home since the surgery. It was great waking up in my own bed. I naturally woke up a 7am, took my synthroid, and fell back asleep (because no work!).

I do not know which is crazier at night: the hospital or my house. At the hospital I had to deal with doctors and nurses coming in the room through the night, and noises in the hall. At home, I have to deal with kids, a snoring dog, a meowing cat, and a wife that talks in her sleep. Last night was particularly interesting because the labador decided to share my youngest son's bed with him in the middle of the night... And then decided not to share but to spread out and take the entire bed.

I showered and shaved for the first time. Made a grocery list and planned out some meals (trying to stay healthy for a quick heal). I walked on the treadmill several times, made lunch, and did some light work around the house. I spent time with the kids. I wanted to get back into the swing of things, however, I also didn't want to over due it. I am also staying diligent with My Fitness App so I can make sure I am Maximizing my nutrition so it promotes quick healing. I found an interesting series on Netflix but I normally only let myself watch Netflix if I am excercising, so, this gives me a good incentive to use the treadmill.

I am feeling great. The sore throat caused by the breathing tube comes and goes (usually goes). I don't touch the incision or let anything touch it. The incision isn't a bit uncomfortable. I try to be careful turning my head too far or too fast just to be safe. I am also being careful with my voice: when I called for the kids I didn't use my full volume like I normally would. I don't know that I could have used my full volume - I just didn't feel comfortable trying to. I suspect I have lost some of that volume (a common and often temporary post-op symptom).

Much of today was about recovering from the hospital stay: all the bruising from failed blood work, tape glue residue stuck to my skin, the area on my hand where the IV had grown impacted, the scrapes from blood pressure colars, the nicks from surgery, and more.

The nurses did my vitals regularly while at the hospital. I am continuing the activity.  Every few hours I take my temperature and I have a blood pressure wrist cuff that also tells heart rate. I need to watch for fever, and am watching the other numbers to be sure they don't go strange.

My energy level is high. I lost six pounds during the hospital visit (I understand that is likely to all come back). There was a lot I wanted to do today, I got most of it done, and the day flew by way too fast.

Thyroidectomy Post-op 102 hours

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Thyroidectomy Scar: first five days

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Thyroidectomy Post-op 78 Hours

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Shaving with an Incision

I wanted to give a male perspective to a Thyroidectomy and what better topic can there be than shaving with an incision?

I am 90 hours post-op, haven't shaved yet, and have grown the start of a good beard. The good news: my incision is pretty low on my neck - well below my beard hair line.

Many people will be looking at my incision and it would look pretty disgusting to have hair growing out of it or around it. I really don't care about vanity but I wanted to get it cleaned up.
My first shave was with an electric shaver. I only got as close to the incision as I felt comfortable (from the picture you can see I didn't get very close). There was no pain, I was just being careful. 

Then I carefully dry shaved with a razor around the Adam's Apple, being careful not to shave-burn the skin.
The end result was certainly not the best shave I have ever had, but it looks better than it did. I am sure that I will be able to get more aggressive with it in the coming days and weeks. 


Friday, August 12, 2016

Thyroidectomy post-op Day 4

When your biggest complaint is "they forgot my Oatmeal when they delivered my Omlet", you have it pretty good. And yet this morning, that was my only complaint.

That, and I was getting bored at the hospital. I had been watching the Summer Olympics but there weren't any good competitions. Trampoline gymnastics was the day's highlight. Luckily my wife showed up before lunch.

The normal waves of doctors came through in the morning along with a new team: Endocrinology. 

My calcium levels were a mess due to loosing two parathyroid glands during surgery. There was a disagreement between the surgical team and endocrinology on what my calcium levels should be before getting released to go home. The surgical team wanted my blood calcium levels to be consistency above 8.5. Endocrinology wanted 8-8.5, and was willing to accept a 7.9. In the end? Endo would win and secure my release. My last four numbers )taken eight hours apart) were 7.9, 8.6, 7.9, and 8.2 - which was good enough to go.

The Endo Doctor explained that she was OK with 8-8.5 because there were too many unknowns until the pathology report came back on my thyroid. She was confident that I was getting enough calcium (10.5 pills per day plus 2 caltrait), and would order blood labs 2x/week to keep track of things. She explained that my remaining parathyroids would assume their added role and I would be fine.

She then mentioned that I would be monitored closely for the next six months to see if I would get a "reoccurance of Thyroid cancer". Hugh? I said to her - my thyroid is removed, how is that possible? She explained that it could show up in the lymph nodes. Ok. That made sense.

At 1:30pm I was cleared to go home. But by the time all the paperwork was done and the pharmacy order arrived, it was 4:30.

I arrived home at 5pm to a "Welcome Home Dad" sign on the front door and a labador wagging his tail in the window.

 This is a challenging moment for a father because you want to demonstrate strength before your children. Someday they will have incredible challenges in their lives and their memories of these moments could impact them. I wanted to assure them that everything was OK and they had nothing to worry about. Even though I was tired (not much sleep last night) and this had been a long experience, I mustered energy and enthusiasm. After a greeting we gathered in the living room where I offered to answer all of their questions. This was also their first chance to see my incision, and they all agreed it didn't look that bad.

I was home! No more black and blue marks from nurses who didn't know how to draw blood. No more tape on my arm hairs. No more 1am vitals checks. Best of all: No more hospital gowns.





Thyroidectomy post-op 66 hours

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Thursday, August 11, 2016

Thyroidectomy Post-op Day 3

As I read other accounts of Thyroidectomy, I found it odd that the frequency of posts quickly trailed off. I am starting to understand why.., life just returns to normal. I kinda feel that way at the end of Day 3.

I spent all day sitting in a chair or walking laps around the hospital wing. I feel fine and I am ready to go home (even though I am enjoying the accommodations). Unfortunately my parathyroids disagree. My blood calcium levels continually dropped to 7.9 before shooting up at 4pm to 8.6 and back down to 7.9 at 10pm. Calcium needs to be at least 8.5, so, 8.6 is good. 7.9? Not so much.  The surgeons involved an Endicrin doctor and decided to keep me until I had 24 hours of good calcium numbers, so, that means spending tonight in the hospital.

My wife has hung out with me at the hospital for around seven hours today. She has to balance running the family without me but I think she enjoys spending the time with me at the hospital and I think it helps her. Of course, I enjoy her company, having someone to walk with and play cards and help pass the time. But I just know there are dentist appointments for the kids, sports practices, shopping, and more that are on her plate too.

I am feeling good and hopeful something will get figured out with the calcium on Day 4.


Thyroidectomy Post-op 56 hours

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Eating after Thyroidectomy

I read occurrences of people eating Lasagna or a Hamburger after Thyroidectomy and I found that hard to believe. I want to share with you what I ate. I understand every circumstance is different and I really hope you get to share my experience.

The first evening, around four hours after surgery completed, I hade a clear liquid dinner. It was broth, jello, juice, and lemon ice.

I was encouraged to do solid foods the next morning  (16 hours after surgery ended). I did a cheese omlet, yogurt, and English muffin. I cut everything up small and tore small pieces of the muffin apart to eat.

For lunch, 22 hours after surgery ended, it was Turkey and mashed potatoes, rice, juice, and chocolate pudding.

For dinner, I stuck with Turkey. Tomato soup, turkey, dressing, mashed potato, rice, juice, pudding, and lemon ice.

And that's what I continued to eat during my stay; breakfast omlets and turkey. There were other things to pick but this is what I felt like eating.

The point of me showing this is to help anyone who might be afraid about what they will and won't be able to eat. I had no problem eating this stuff. My "sore throat" didn't bother me eating. As said, I really hope you have the same good experience I had.





Thyroidectomy Post-op 42 hours

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Wednesday, August 10, 2016

Thyroidectomy post-op Day Two

I hope my Day One story is encouraging and I hope you have as good of an experience as I have. As I mentioned before, every situation is different, but for me, my experience has been that of a sore throat from the breathing tube. I am sure you have had a sore throat before and can easily relate to my experience.

I came into Day two with no post surgery pain medicine. I could have took something for the sore throat, but, I have had sore throats before. Sore throats hurt when you cough or hiccup. I heard sneezes were bad after a thyroidectomy, but my one sneeze was OK. So no pain meds as all, which really surprises me.

I treated myself as if I were very fragile. I had an IV in my hand, a blood oxygen sensor clipped to my finger, oxygen hose on my nose, and taped areas from blood draws. I didn't know how far I could turn my neck so I did my best to position my neck so it was comfortable and I felt nothing. As the day progressed and I was disconnected from IV, air, and sensor, I felt less fragile and more free to move. I was able to use the toilet instead of a bottle, and my wife was able to take me on walks. I sat in a chair and moved around my room and was feeling very good.

I was impressed with eating too. They encouraged solid food so I had an omelet for breakfast. I unnecessarily cut it tiny and ate it slowly. For lunch I had turkey and mashed potatoes. For dinner I stayed with the turkey and mashed potatoes but added stuffing and rice pilaf. I could really eat anything. And I know it is hard to believe but eating is painless. I kept the bites small and soft and all was good.

I got the first look of the incision in the bathroom mirror. I glanced at it by accident and quickly looked away. I wasn't ready to really look at it. As my wife and I walked around the hospital wing, hospital visitors looked at my oddly. Was it because you don't see a giant man in a gown everyday? Or was it the scar? I think I am a little self conscious about it, which is odd because I didn't think I would care at all.

The first doctor saw me at 5:30am followed by the surgeon at 7am. They looked at the incision and was available to answer all of our questions.

I napped occasionally throughout the day. Blood continued to be drawn to check my calcium levels. The levels were continually dropping. It needed to be at least 8.5 but by the end of the day it was down to 8.1. I can't be sent home until the calcium gets figured out because low calcium can create a critical situation.

The nurses were awesome. I try to be self sufficient and I realize there are probably others that need help. Some of the nurses are better at drawing blood than others, but I don't think I could draw blood at all, so, I appreciate all of their efforts. I find that a smile and good attitude (if you can muster it) go a long ways.

To pass the time, my wife and I watched TV, played cards, went for walks, and talked. Finally we agreed she needed to go home and take care of things, so, she left at 7:30pm. I went to bed early and slept well. At the end of the day the only complaint was a rapidly improving sore throat... and the ugly gown I had to wear.




Thyroidectomy post-op Day Two

I hope my Day One story is encouraging and I hope you have as good of an experience as I have. As I mentioned before, every situation is different, but for me, my experience has been that of a sore throat from the breathing tube. I am sure you have had a sore throat before and can easily relate to my experience.

I came into Day two with no post surgery pain medicine. I could have took something for the sore throat, but, I have had sore throats before. Sore throats hurt when you cough or hiccup. I heard sneezes were bad after a thyroidectomy, but my one sneeze was OK. So no pain meds as all, which really surprises me.

I treated myself as if I were very fragile. I had an IV in my hand, a blood oxygen sensor clipped to my finger, oxygen hose on my nose, and taped areas from blood draws. I didn't know how far I could turn my neck so I did my best to position my neck so it was comfortable and I felt nothing. As the day progressed and I was disconnected from IV, air, and sensor, I felt less fragile and more free to move. I was able to use the toilet instead of a bottle, and my wife was able to take me on walks. I sat in a chair and moved around my room and was feeling very good.

I was impressed with eating too. They encouraged solid food so I had an omelet for breakfast. I unnecessarily cut it tiny and ate it slowly. For lunch I had turkey and mashed potatoes. For dinner I stayed with the turkey and mashed potatoes but added stuffing and rice pilaf. I could really eat anything. And I know it is hard to believe but eating is painless. I kept the bites small and soft and all was good.

I got the first look of the incision in the bathroom mirror. I glanced at it by accident and quickly looked away. I wasn't ready to really look at it. As my wife and I walked around the hospital wing, hospital visitors looked at my oddly. Was it because you don't see a giant man in a gown everyday? Or was it the scar? I think I am a little self conscious about it, which is odd because I didn't think I would care at all.

The first doctor saw me at 5:30am followed by the surgeon at 7am. They looked at the incision and was available to answer all of our questions.

I napped occasionally throughout the day. Blood continued to be drawn to check my calcium levels. The levels were continually dropping. It needed to be at least 8.5 but by the end of the day it was down to 8.1. I can't be sent home until the calcium gets figured out because low calcium can create a critical situation.

The nurses were awesome. I try to be self sufficient and I realize there are probably others that need help. Some of the nurses are better at drawing blood than others, but I don't think I could draw blood at all, so, I appreciate all of their efforts. I find that a smile and good attitude (if you can muster it) go a long ways.

To pass the time, my wife and I watched TV, played cards, went for walks, and talked. Finally we agreed she needed to go home and take care of things, so, she left at 7:30pm. I went to bed early and slept well. At the end of the day the only complaint was a rapidly improving sore throat... and the ugly gown I had to wear.




Thyroidectomy Post-op 30 hours

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Tuesday, August 9, 2016

Thyroidectomy Post-op 12 hours

Click here for video update


Thyroidectomy post-op 2.5 hours

Click to see video

Thyroidectomy surgery

To prepare myself for surgery I read many accounts. They were very helpful so I wanted to do a great job describing mine so that I could help others. I Also wanted to give a male perspective (because there aren't many male perspectives online) although the experience is essentially the same. I hope I do a good job.

First, let me recognize that everyone is different and therefore may have different experiences. Surgeons have different experience and different techniques and medical care is different around the US and in other countries. I only hope you have as good of an experience as I have had (even though I had complications).

I will get into the day by day, and sometimes hour by hour details. But basically I fell asleep and woke with a sore throat from the breathing tube and that was my story. If you have ever had a sore throat from a bad cold? That was it. 

Recovering from the anesthesia was an experience that I will cover. Again, not bad - just something you should know about. 

Here is the story:

I wasn't allowed to eat past midnight so I had a bowl of cereal at 10pm (13 hours before surgery). Even though I ate, I woke up in the morning hungry and wanting coffee. 

I shaved my beard off my neck because I just didn't want to deal with it post op. I gave myself a last pre-op weight check. Said goodbye to the family and dog, and drove to the hospital with my wife. I arrived 2.5 hours before surgery.

I highly recommend using the time before surgery to completely clean yourself out in the bathroom because the anesthesia will cause havoc to you in that department.

There is a well rehearsed process to get me ready for surgery. I was called back and put in an area with a bed and a privacy curtain. I stripped down, put on a gown and slippers, and climbed into bed. A nurse then came in and asked me a ton of questions. They ran an IV into the back of my hand and then my wife was allowed to join me.

After a while I was taken to Anesthesiology. All the doctors stopped by, one at a time, to introduce themselves. There were so many of them I can't remember how many! 

They injected something in my IV that she called a "Margarita". Then I was taken to the operating room. I looked around the operating room - it was a very large room with a lot of people all ready for surgery. I wasn't in the room for two minutes before they knocked me out - bam - lights out!

Meanwhile my wife went to a nice waiting room where she could watch the status on a computer screen. She described the waiting room as being very nice, comfortable, and everyone working there was accommodating.

3.5 hours after surgery started, the surgeon called my wife in the waiting room and gave her an update. I had been taken to recovery. He explained to her the tumor was "sticky" requiring him to remove the two parathyroid glands on the left. He also said he saw nothing that concerned him with the lymph node.

4.5 hours after surgery I started waking up. My question to the anesthesiologist was  "Did they do the surgery?" I couldn't tell. He told me "yes".

I was tired and wanted to go back to sleep but I knew my role was to wake up, so, I really tried. It was like waking up for work Monday morning after staying out late all weekend.

5.5 hours (4:30pm) they sent me upstairs to my room. I was still graugy and had trouble focusing. My wife had my glasses and that did t help. They had me walk from one bed to another, which I did without problem. They gave me a new gown because I had sweated through the last one. They put compression straps on my legs so I wouldn't get blood clots.

The anesthesia had left me with a mild dull headache behind the ears. The breathing tube had left my jaw mildly sore and given me a sore throat. The back of my neck and shoulders had some dull aching simply from the position I had been in during surgery. The nurse gave a heating pad for the back of my neck and that helped. There wasn't pain... Just discomfort.

At six hours (5pm) my wife arrived and was able to give me my glasses. The nurses wanted me to practice deep breaths to get the anesthesia out of my system. I had to blow out all the air from my lungs into a device and then breath in deeply.

At seven and a half hours (6:30pm) headache was pretty much gone and I was feeling increasingly better as the anesthesia was working out of my system, but I was still light headed. I received a calcium pill and stool softener.

At eight and a half hours (7:30pm) dinner arrived. It was all liquid: broth, jello, and juice. I wasn't terribly hungry but had no problem eating it and it was really good.

I was still on an IV, which was making me pee every two hours. It was strange to throw my legs over the side of the bed and use the bottle but it was fine.

At 11 hours (10pm) my nurse came to walk me. That did a lot to help clear my mind from the haze. It was very beneficial.

The day ended with a sore throat and very mild soreness of my jaw and back of my neck. I was surprised I required no pain medicine.. Otherwise I was watching TV and talking with my wife as normal. I worked on deep breathing and I kept drinking (and kept peeing) and it was comfortable and not all that bad. They allowed my wife to spend the night in my hospital room and I took cat naps all night long.



Monday, August 8, 2016

Thyroidectomy: What To Take To The Hospital

My thyroidectomy is tomorrow so tonight I am packing my hospital bag:

Notepad
Pens
iPhone
Charging cable
Headphones (earbuds) 
Neck pillow (C shaped pillow)
Socks
Underwater
Pajama bottoms
Picture ID
Hand sanatizer
Ear plugs
Sleep mask

What I am not taking:
Jewelry (including wedding ring)
Wallet
Everything that is not completely necessary

Anything you take to the hospital can be stolen, so, taking a cell phone is "at your own risk".

I have read that some people will take their favorite pillow, bath robe, slippers, hard candy/throat lozenges, heating pad/warm packs, and a magazine.

My wife will be taking me and staying at the hospital all day, so, she needs to take enough things to occupy her. In addition to her giant purse, notepad, pens, iPhone, iPod, headphones, cash for the vending machine,  snacks, water, book, calendar, asprine, wallet, keys, sweater, and more.

My wife fashioned what she is going to look like in the waiting room with her giant purse, her bag, and my bag - it looked like she was moving in for a week!  


Call the day before the surgery

I was instructed that I needed to call the day before the surgery to find out what time my surgery was. So, I called. I need to arrive to the hospital by 8:45 am. Surgery will be at 11 am. Fasting after midnight tonight. I have to arrive with photo ID. And they told me where in the hospital to go for the surgery area.

Call from anathesiolgist assistant

I received a call this morning from the Assistant Doctor for Anathesiology. She was following up on some questions I answered two weeks ago. She focused mostly on my heart concerning an incident many years ago involving over use of caffeine drinks. I explained to her that in the years after that, I have jogged daily 5 miles a day (not anymore though), went to the gym and did cardio for sometimes four hours, and now a days I go to the gym almost daily and do cardio for 45 minutes. 

She asked if I had any problems opening my mouth or tipping my hea back, and I said I didn't.

And that was it!

Surgery is tomorrow so my wife took me out to eat for lunch. Most of our time today is to prepare the house for when I return, and figure out what to pack and take to the hospital (she is going to be in the waiting room during the surgery).

For me? This is kinda surreal. I don't think it has hit me that this is actually happening to me, not someone I am writing about on a blog. When I get worried, I think of all the stories I have read about all the people who have done this and were just fine. If they can do it? So can I!

Saturday, August 6, 2016

Camping

I decided to go camping as my way of spending my last 72 hours with my Thyroid. This isn't rustic tent camping. It is more like four star hotel camping. There is a cabin in the wood with a large screen TV, video games, running water, and all the luxuries of home. But it is in the woods! And near an incredible man made lake. In a way, I am roughing it because there is no  Internet or cell service. I forgot how tied my life is to the internet until I spent several days without it.

The trip is to just relax and forget about the upcoming surgery.


Thursday, August 4, 2016

Pre-Op Panic?

Maybe it was a panic because my surgery is in five days. But I read something on the Internet and I knew that if I didn't ask the doctor about it now, it would bug me for the rest of my life!

I read an article from four months ago that said encapsulated follicular variant of papillary thyroid carcinoma could be treated by removing the nodule instead of the entire thyroid.

It would be just my luck - I would have the entire thyroid removed only to discover in a couple of years that they don't do that anymore because they have a better treatment!

So I called and talked to the nurse. I apologized for the question I was about to asked and told her I was self diagnosing via Google. I explained to her what I had read and asked for an opinion and explanation.

She explained that in cases like that, they remove the entire thyroid, not just a nodule. She suggested I ask the surgeon about it on the day of my surgery to get a better explanation.

I sure hope they aren't going to cut out my Thyroid because that's just what they have always done. I am no doctor and I don't want to pretend to know more than The doctor, and I understand this is probably just pre-op panic, but I want to get an answer before my thyroid gets tossed into the trash. If it has to be removed? Fine, I understand it, take it away. But if it doesn't? I would like to know that as an option.

Tuesday, August 2, 2016

Third Ultrasound Today

My surgery is one week from today so I am enjoying my last week with a thyroid. I am expecting life to change quite a bit after the surgery but for now I can be worry free. I don't know if I should enjoy this week and eat and do anything I want to do, or, should prepare myself with a week of healthy eating habits and exercise. I recently returned from a great family vacation where, as I often do on these trips, put on almost ten pounds. I suppose the party time is over and I should get serious.

I had my third pre-op thyroid ultrasound today. The purpose of this ultrasound was to look at the lymph nodes to make sure the cancer hasn't spread. If it has spread, the lumph nodes will have to come out too. 

The ultrasound was at a different facility from where I have had the other two ultrasounds because this ultrasound was ordered by my surgeon and I needed to have it done at a facility within the surgeon's network. I was familiar with this facility because it is where I had my nuclear thyroid test two years ago.

Because the facility is within my surgeon's network, I arrived without a "script" from my doctor, which felt odd. I just had to hope and trust that I would arrive and they would know what needed to be done.

I checked in and was given a wrist band with my name. After a short wait, I was called back. The ultrasound lady asked me what was going on with the Thyroid, if I knew why I was there today, and if I had a needle biopsy done. I answered all the questions and she began the thirty minute ultrasound. It was pretty easy for me - just lay there and look at the ceiling while she ran the ultrasound device all over my neck from behind my ear to my collar bone. When told, I would turn my head to the right or left. 

Once the ultrasound was finished, I used a towel to wipe off the ultrasound gel and then I was finished. I was told it would take a couple of days to get the results.

I went across the hall to get blood work done. I was told I needed to get the blood work completed within 1 month before the surgery, so, 1 week qualifies! They found the surgeon's orders in the computer, called me back, and took four viles. I don't know what these tests are, but, they checked APTT, basic metabolic panel, CBC and differential, and Protime -INR.

I took advantage of the opportunity to ask about Thyroid Labs. I understand I may need labs done every six weeks, so, I want to learn what is involved. The technician drawing my blood said that thyroid labs require anywhere from one to three viles depending on what tests are ordered. She reassured me that three viles are not bad - she has sometimes needed to take 12 viles for other conditions.

Blood work and ultrasound are done. Check those off the list!

Tonight I get a hair cut because I don't want to have to deal with a hair cut while recovering from the surgery.

Monday, August 1, 2016

Health Care Proxy Form

I filled out my Health Care Proxy Form.
The health care proxy tells who is allowed to make medical decisions for me if I become unable to do so. While it is unlikely to need the form for a Thyroidectomy, A- everyone should have a medical proxy, and B - it is a good idea to have it in place when having a major surgery. 

The form allowed me to pick a primary and an alternative (should the primary be unable to fulfill their duty). So, I picked my wife as the primary and my adult daughter as the alternative. 

There was an area on the form where I can indicate my desires should I be incompacitated, such as, when to stop a feeding tube or artificial breathing. The form also included an area for organ and tissue donation where I can decide what I want done.

The form needed to be signed by two witnesses (who were not the primary not alternative).  Then I made several copies of the form. I gave each proxy a copy, put another copy with my important papers, and will give a fourth copy to the hospital when I check in. 

You can get a copy of the form here:
https://www.health.ny.gov/publications/1430.pdf

Stay Organized

A thyroidectomy means you are going to get a ton of information, Doctor appointments, bills,  forms, and more. You don't want to forget something a doctor told you, or have to hunt around for that appointment reminder card. A great was to relieve stress is to stay organized! Staying organized does not have to be a huge task.

Go to the office supply store and buy a blinder that has a note pad and folders for storing papers. Keep all your notes on the notepad and date them. If you talk to someone on the phone? Jot down a short note. If you are in a doctor's appointment, take notes on everything you are told.

Take all the paperwork related to your thyroidectomy and put them in the folders. Include any important phone numbers you might need to have. 

Do this and you'll have a simple stress free way to stay organized.